Carers UK

Campaigns for better deals for carers, and provides information on carers' rights.

Free Helpline: 0808 808 7777
(Monday - Friday: 10am- 4pm)

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Website: www.carersuk.org

Contact a Family

UK-wide charity providing advice, information and support to parents of all disabled children.

Free Helpline: 0808 808 3555
for parents and families (Mon-Fri 9.30am-5pm)

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Website: www.cafamily.org.uk

Disability, Pregnancy and Parenthood International (DPPI)

Organisation controlled by disabled parents that promotes better awareness and support for disabled people during pregnancy and as parents. Information and online communities are on the website. Also for families, professionals and interested others.

Website: http://disabledparent.org.uk 

Equality and Human Rights Commission

Government body that works to eliminate discrimination, reduce inequality, protect human rights and to build good relations, ensuring that everyone has a fair chance to participate in society. Gives information and guidance on discrimination and human rights.

Equality and Human Rights Commission Free Helpline – England: 0808 800 0082

Website: www.equalityhumanrights.com

Advice website: http://www.equalityadvisoryservice.com 

Family Fund Trust

The Family Fund gives grants to low-income families in the UK to meet the additional needs of caring for a severely disabled child.

Website: www.familyfund.org.uk. Has online application form and the opportunity to download the form and post it.


Works across England with people who are vulnerable or marginalised to raise their voices and have their rights respected. They provide a range of services including advocacy. To find out what is available in your area visit their website: http://www.voiceability.org or telephone 01223 555800.

Voiceability have published a Parents Booklet (with support from Family Rights Group). Written for, and by, parents who have learning disabilities, this booklet tells you in easy to understand words and pictures what happens if Children's Services feel your child is at risk of harm.

You can find the parents booklet on Voiceability’s website here.