My daughter has complex needs and now on CIN

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Dinkysmum
Posts: 3
Joined: Wed Apr 30, 2014 9:55 pm

My daughter has complex needs and now on CIN

Post by Dinkysmum » Thu May 01, 2014 11:12 am

Hi,

I'm new to all of this.

My daughter has a provisional diagnosis of PDA which is a rather unique and challenging form of autism.

The school trying to be awkward after numerous issues called social services over an incident of natural 5 year old self exploratory behaviour. They explained all her behaviours without mentioning the fact that dinky is under the paediatricians, and said that my parenting was a concern.

The child and family assessment was done, my parenting was commended (I'm not the best mum in the world but I do try), but it was noted that we do not have any real support and that Dinky has significant and complex needs.

There was a massive multi agency meeting yesterday in which it was decided that Dinky is now classed as a child in need, that way we can access respite and have our own social worker. Although it was suggested that Dinky doesn't actually meet the criteria, but they will do this anyway.

Does anyone know what happens now? I'm feeling a little lost.


Thank you

blueplain
Posts: 145
Joined: Sun Jan 27, 2013 11:07 am

Re: My daughter has complex needs and now on CIN

Post by blueplain » Thu May 01, 2014 12:05 pm

You will have regular meetings which can range from 1 month to 3 months. I am surprised that you was not put on CAF because you can get all the support without a social worker, however "complex needs" aka a severe dissability can fall within child in need and not be a reflection upon your parenting skills.

Just be polite, accept all the advice and proffesional help and it will go smoothly. At thees meetings all the needs of your child will be discussed and as all the proffesionals are there they can quickly decide and put into action what your child needs. So try not to worry and make it a positive thing for yourself.

Anxious
Posts: 113
Joined: Thu Dec 26, 2013 4:38 pm

Re: My daughter has complex needs and now on CIN

Post by Anxious » Thu May 01, 2014 1:33 pm

I currently have my children on a cin plan and as blueplain has said accept hteir advice and do what they ask within reason of course and you will be fine. I understand how stressful it can be but you will get through it. Accepting help just goes to show you are a good parent as others would refuse it and tell them where to go it just shows how much you love your child :)

Dinkysmum
Posts: 3
Joined: Wed Apr 30, 2014 9:55 pm

Re: My daughter has complex needs and now on CIN

Post by Dinkysmum » Thu May 01, 2014 2:43 pm

Thank you

We had a CAF, but in all reality, it was just a paperwork exercise. There was no support given, what we really need is a little respite, and the CAF lead from integrated services couldn't get us anything, so we have had to go on CIN to get direct payments as she doesn't qualify for the Disability team as 'not severe enough'.

I'm hoping that this will be positive.

blueplain
Posts: 145
Joined: Sun Jan 27, 2013 11:07 am

Re: My daughter has complex needs and now on CIN

Post by blueplain » Thu May 01, 2014 4:35 pm

Dinkysmum wrote:Thank you

We had a CAF, but in all reality, it was just a paperwork exercise. There was no support given, what we really need is a little respite, and the CAF lead from integrated services couldn't get us anything, so we have had to go on CIN to get direct payments as she doesn't qualify for the Disability team as 'not severe enough'.

I'm hoping that this will be positive.
I have 5 children, 4 of them have difficulties and through 4 years of intervention we was not once offered respite. We told them on many occasions we have not had a holiday since before child one and they do not seem to have room for the parents mentle health. As parents we are expected to be able to rear our children and manage our own mentle health. However some families do not have equal family support or in a financial positon to give themselves breaks. You would think that children services would automaticly offer such things as part of helping the family as a whole.

ange301126
Posts: 537
Joined: Thu Nov 10, 2011 1:27 pm

Re: My daughter has complex needs and now on CIN

Post by ange301126 » Thu May 01, 2014 8:28 pm

Dear dinkysmum, At any meeting you attend you need input from an autism specialist.
Unfortunately many social workers are badly trained and probably they don't even know what respite care is.They have little knowledge of autism in my experience.


Autism experts reported to court in our case and stated the quite clear advice that periodic respite care was to be an essential to any care-plan.They also stated that expert advice was to be followed at all times.

If you want respite care in accordance with that advice,I suggest you contact the National
Autistic Society for information.

Dinkysmum
Posts: 3
Joined: Wed Apr 30, 2014 9:55 pm

Re: My daughter has complex needs and now on CIN

Post by Dinkysmum » Fri May 02, 2014 9:55 am

Thanks ange
I will try to make sure I get an autism specialist to attend. Thanks for that.

:-)

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